It has been a whirlwind of a fortnight in DC, with the inauguration and early actions of the incoming Administration as well as important votes of the 115th Congress underway. UCP joined a group letter with other disability organizations opposing the budget resolution and has participated in a variety of stakeholder meetings to determine when and how to engage the new Administration.
As we look to the annual meeting in Nashville, the public policy committee is meeting to review our goals and looks forward to reporting to the membership on the future direction of UCP’s public policy work.
Client- Facing Issues
Endrew F. v. Douglas County School District:
UCP’s policy intern wrote a blog post about the recent arguments here. A helpful rundown on the issues in the case is available here. The amicus brief that UCP joined is here.
Defense and Veterans Brain Injury Center (DVBIC) has launched a podcast for Military Family Caregivers. Each episode of The TBI Family podcasts provides information about traumatic brain injury, tells caregiver stories, and shares resources for TBI caregivers. Click here to listen.
ABLE Resources and Webinar for Families:
UCP is a supporting partner of the ABLE National Resource Center (ANRC). ANRC is hosting a free webinar on January 31st for families and self advocates focused on introducing four of the most recent plans to launch. Click here to learn more about ANRC, and here to register for the webinar. ANRC also created short informative videos on ABLE Basics and Becoming ABLE Ready.
The National Health Law Program (NHeLP) has put together a helpful fact sheet about the ten ways that the ACA helps people with disabilities. Click here to check it out.
ACL’s National Institute on Disability, Independent Living, and Rehabilitation Research has several active funding opportunities under code NIDILRR or 93.433 at grants.gov. In particular, a development grant is available to CBOs to plan and conduct research, demonstration projects, training, and related activities that develop methods, procedures, and rehabilitation technology which support people with severe disabilities. Learn more here, and apply by February 21st.
The CDC is accepting applications from organizations to host a two-year public health fellow (fully funded by CDC). To learn more about the program, and to apply to host by January 29th, click here.
Section 2040 of the 21st Century Cures Act focuses on elevating rehabilitation science at NIH. The Disability and Rehabilitation Research Coalition (DRRC) put together a helpful section by section summary of the what the law will do.
1) CMS published a final rule for home health agencies, covering the conditions of participation for beneficiaries as well as several other topics. The rule is effective July 13, 2017. Learn more here. Complete rule is available here.
2) CMS also recently published a proposed rule seeking comments before March 17th about the qualifications necessary for customized orthotics professionals. Read the proposed rule here. Late last year, CMS issued a final rule regarding the prior authorization process for (Durable Medical Equipment, Prosthetics, Orthotics, and Supplies (DMEPOS). That rule is here.
3) Starting February 7th, CMS’ Medicare-Medicaid Coordination Office is hosting a multi-part webinar series on the Disability-Competent Care model for providers and their front-line staff members. Learn more about the series here.
1) HI and NM recently received initial approval for their state HCBS transition plans. Full list here.
2) Caring Across Generations recently issued a report on state LTSS policy and aging trends. Read more here.
3) CMS has published three different reports about LTSS Section 1915(c) services. FY 14 data, 2012-2013 data, and 2012 beneficiary profiles.
OSERS recently published a guide for families and students about transition. Click here to read it.
1) ThinkWork Video: Organizational Transformation, From Workshops to Community Employment
Provider agencies across the country are transitioning from segregated workshop options to supporting integrated community careers for people with disabilities. Their latest video covers findings from a panel of experts who examined six characteristics considered essential for provider transformation, as well as one organization’s experience in making this transition.
2) DOJ recently announced plans for proposed rulemaking of Section 504. While the NPRM has not yet been printed, DOJ has released some FAQs about what is in the works. Read more here.
3) OSERS/RSA has released FAQs about the definition of competitive integrated employment. Read more here.
4) The National Conference of State Legislators (NCSL) recently released a state policy framework and report on workforce development for people with disabilities. Read the report here. A related webinar was recently held for state legislators and their staff here.
1) Request for Information: Identifying and Sharing Partnership Best Practices Between Community-Based Organizations and Health Care Systems
Through support from the Robert Wood Johnson Foundation, the Center for Health Care Strategies (CHCS) is collaborating with the Nonprofit Finance Fund and the Alliance for Strong Families and Communities to identify and disseminate best practices for partnership models between community-based organizations (CBOs) and health care systems, especially those serving low-income and vulnerable populations.
Organizations working in this space are invited to participate in and share with other relevant groups the request for information survey to help advance knowledge about these critical partnerships. The survey is designed to:
Identify promising models and challenges for building effective partnerships;
Inform funding and policies; and
Advance effective partnerships across the nation.
Key findings from this survey will be synthesized and shared widely through publications, webinars, and other vehicles. Using survey responses, up to five partnerships will be selected to be showcased nationally as case studies.
Please complete the survey by Friday, January 27. Click here to participate.
2) CMS Seeks Input on PACE Innovation Act
CMS is seeking public input on potential adaptations of the model of care employed by the Programs of All-Inclusive Care for the Elderly (PACE) for new populations, including individuals with physical disabilities.
The PACE Innovation Act of 2015 (PIA) provides authority to test application of PACE-like models for additional populations, including populations under the age of 55 and those who do not qualify for a nursing home level of care, under Section 1115A of the Social Security Act.
Comments must be received by 5 p.m. EST on February 10, 2017. Read more here about submission process.
3) NIDILRR Seeks Comment on Draft Long-Range Plan
The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) is requesting comments on its draft long-range plan for the period 2018-2023.
Within ACL, NIDILRR works to generate new knowledge and promote its effective use to improve the abilities of individuals with disabilities to perform activities of their choice in the community; and to expand society’s capacity to provide full opportunities and accommodations for people with disabilities. NIDILRR conducts its work through grants that support research and development.
This long-range plan provides an overview of the state of people with disabilities in the United States and NIDILRR’s current investments and potential future directions for research grants. NIDILRR is publishing the draft plan to obtain public comment on the proposed research and development activities to help the agency fulfill its mission.
Read the NIDILRR draft long-range plan.
Comments will be accepted by email to NIDILRRfuture@acl.hhs.gov.
Comments are due by close of business on Monday, March 20.