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Register Now for the 2017 Disability Policy Seminar

What You Need to Know About ABLE Accounts


Eau Claire Couple Finds Love Thanks to UCP of West Central Wisconsin


“AccessMap” Aims to Help Make the World Easier to Navigate for People with Disabilities


UCP’s “Speak for Yourself” Webinar Gives Individuals with Disabilities the Strategies to Take On their Health Outcomes




March: Developmental Disabilities and Cerebral Palsy Awareness Month


March 12-14:2017 UCP Annual Meeting of the Members of the Corporation at Embassy Suites Airport Hotel, Nashville, TN. Please reserve your room in the room block and Register here for the 2017 Annual Meeting.


March 20-22: Disability Policy Seminar, The Renaissance Washington, DC Downtown Hotel. Register here.


March 23: Affiliate Topical Call. 3:00 PM EST. Topic: Google Adwords for Nonprofits. Hosted by the South RAC. Call in #: 1-888-402-6958.



Jeff Cooper Announces Retirement

After 16 years of transformative leadership and tireless advocacy at  UCP of Central PA, President and CEO Jeff Cooper has announced his retirement effective April 30, 2017. Under Jeff’s direction and guidance, UCP of Central PA has experienced substantial growth: in not only in their geographic footprint, but also in the scope and innovation of their program offerings.
UCP congratulates Jeff on his retirement, and thanks him for his engagement with UCP and network affiliates over many years — including his service on the Public Policy Committee!

Annual Meeting of the Members Registration Form and Hotel Reservations

Our thanks to Therap and 501(c) Agencies Trust for their generous sponsorship support for the annual meeting. Please remember to make your hotel reservations for the annual meeting March 12-14, 2017. The link for hotel reservations is here. RAC meetings will begin on Sunday at 12:30 pm, and the annual meeting of the membership will end by 1:00pm on Tuesday March 14, 2017. The cost for registration for the annual meeting will be $200.00 per person. Please complete your registration form here.

Changes to the Awards For Excellence
UCP has placed the Awards for Excellence on hold for 2017 since the focus of the Annual Meeting of the Members will be the strategic plan, with a tight agenda. UCP will still present the Kathy O. Maul Leadership Award to an outstanding affiliate leader.

Victory 100 Nomination Forms
UCP is attempting to go paperless as much as possible. This year, we will be providing electronic certificates for affiliates that submit nominations for the Victory 100 recognition. This recognition is presented to affiliate volunteers that donate 100 hours or more of service to an affiliate. Please complete the form found here, and submit your names by March 1, 2017. Certificates will be sent electronically to affiliates following the annual meeting of the members. UCP will provide support to affiliates who are unable to print their certificates.

Board of Trustees Nominations
The Nominating Committee is accepting nominations for service on the UCP National Board of Trustees. The committee is particularly looking for individuals who have expertise in Finance and Marketing/Branding. The committee is seeking a pipeline of candidates that will fill vacancies that are anticipated due to term limits, and also ensure that candidate skills are consistent with the skills required to implement the strategic plan. Nominations can be submitted to Glenn Harger, Chair of the Nominating Committee, in care of Shawn Gilleylen at

Affiliate Topical Call

CALL TOPIC:  Google Adwords for Nonprofits

In 2011, Google launched its Ad Grants program, providing eligible nonprofits with $10,000 per month in free online advertising.

What is Google Adwords? Every time you search for something on Google, you’ll notice that Google will show paid advertising, typically at the top, bottom or side of the page, along with the other search results.

This is Google’s paid advertising, also known as Google Adwords.This has also enabled Google to annually donate $100 million, 200,000 hours and $1 billion in products to health, education and community causes.

Google Adwords Grants is a program that offers in kind support ($10,000 per month) to qualifying 501(c) 3 organizations that can be used to increase awareness, recruit volunteers, promote events, and grow donations.  With a little time and ingenuity, Adwords has been shown to lead up to 40,000 new visitors each month to your website!

Mike Salmen and Dennis Csillag will be providing an introduction to Google Adwords Grants for Nonprofits. What it is, how to apply, additional resources, and next-steps to build and maintain a successful online advertising presence.

Call in information is provided in the calendar of events. For questions, contact Anita Porco

Congratulations to Former Board Chair Woody Connette

Congratulations to Woody Connette on the profile that appeared in North Carolina 2017 Super Lawyers!Read the full article here.

Wheels for Humanity Welcomes New Executive Director

Ron Cohen, CEO of UCP of LA and Ventura County recently announced the selection of the new Executive Director for Wheels for Humanity. Read more about the announcement here.Washington Update

 At the risk of stating the obvious, many initiatives are moving forward all at once in Washington. Advocates are rushing to develop summaries, rapid responses, and coordinate with one another on issues of mutual concern. To that end, if you missed the ANCOR membership orientation, here is an archive of the webinar about UCP and ANCOR’s new partnership.
On the ACA repeal (or reform) front, some of the more helpful resources we’ve found related to disabilities issues include: The National Disability Navigator’s list of provisions in ACA that support people with disabilities, and a summary from Health Affairs on what the Trump EO does and doesn’t do. Also, the National Governors Association (NGA) sent a letter to Congress on potential changes. And, the Kaiser Family Foundation has a fact sheet covering the issues related to block and per capita funding, or if you are looking for a summary of how ACA repeal/reform will impact your state’s policies, the National Academy for State Health Policy has a chart for that.

UCP is also monitoring the DeVos confirmation. Some of our colleagues have called into question Ms. DeVos’ investments in a biofeedback company that claims to treat ASD.

On the regulation front, DOJ has issued a NPRM regarding Section 504. UCP is researching the scope of the proposed rule, and will communicate more about the process for comments in the coming weeks.

Also, of note, our colleagues at The Arc recently issued a statement on a possible immigration executive order that would impact individuals with significant disabilities.

Lastly, UCP joined with Easter Seals and 20 other organizations to express concern over efforts in the House to pass a disapproval resolution concerning the Federal Acquisition Regulation rule. H.J. Res 37 passed on mainly party lines, and may move to the Senate next. UCP will continue to monitor.

In the courts, a judge ruled last Thursday on a Corrective Action Plan for HHS that will bring the agency into compliance with the Settlement Agreement in the Jimmo v Burwell case concerning the “improvement standard.” More about the case can be found on the Center for Medicare Advocacy website.

Client-Facing Issues
The Northeast ADA Center has put together a toolkit for workplace advocates to improve their company’s policies with respect to workers with disabilities.

The Social Security Administration has created a video training series for Representative Payees, and the providers who work with them.

Organizational Issues
Funding Opportunity:

ACL’s National Institute on Disability, Independent Living, and Rehabilitation Research has several active funding opportunities under code NIDILRR or 93.433 at In particular, a development grant is available to CBOs to plan and conduct research, demonstration projects, training, and related activities that develop methods, procedures, and rehabilitation technology which support people with severe disabilities. Learn more here, and apply by February 21st.

Funding Opportunity:
The Kessler Foundation’s Signature Employment Grants provide support for non-traditional solutions that increase employment outcomes for individuals with disabilities. Grants ranging from $100,000 to $250,000 per year for up to two years are awarded nationally to fund pilot initiatives, demonstration projects, or social ventures that lead to the generation of new ideas to solve the high unemployment and underemployment of individuals with disabilities. Online grant concepts are due March 17, 2017. Click here to learn more.


If your organization has considered pitching payer systems for contract-based reimbursement arrangements, this webinar on February 17th might be of interest.


Section 2040 of the 21st Century Cures Act focuses on elevating rehabilitation science at NIH. The Disability and Rehabilitation Research Coalition (DRRC) put together a helpfulsection by section summary of what the law will do.

1) National Association of Area Agencies on Aging (n4a) launched an Aging and Disability Business Institute website to provide tools and resources that help CBOs build business acumen.

2) CMS will be hosting a conference call Open Door Forum for Home Health organizations tomorrow at 2 pm. Agenda and call-in information here.

3) CMS issued a reminder to “Payroll-Based Journal” (PBJ) providers about the upcoming reporting deadline on Valentine’s Day. Learn more about the program here.


Lobbying & Advocacy 101: Legal Tips for Aging/Disability Nonprofit Advocates Webinar
Join the Alliance for Justice, and the National Alliance for Caregiving for a webinar on Thursday, February 9, 2017 at 2 PM ET. The webinar will cover the what, why and how of lobbying, its importance, the right of nonprofits to lobby, federal tax law, and more.


OSERS recently published a guide for families and students about transition.Click here to read it.


1) A new report from the LEAD Center and the Workplace Initiative explores UPS’s work training program. Options Unlimited, Inc., UPS and the Coalition for Workforce Diversity worked collaboratively to develop the Transitional Learning Center training program at UPS in Kentucky.

2) LEAD also has issued a guidance brief on Employment First with advice for community rehabilitation program leaders.

Take Action

1) CMS Seeks Input on PACE Innovation Act
CMS is seeking public input on potential adaptations of the model of care employed by the Programs of All-Inclusive Care for the Elderly (PACE) for new populations, including individuals with physical disabilities.

The PACE Innovation Act of 2015 (PIA) provides authority to test application of PACE-like models for additional populations, including populations under the age of 55 and those who do not qualify for a nursing home level of care, under Section 1115A of the Social Security Act.

Comments must be received by 5 p.m. EST on February 10, 2017. Read more here about submission process.
2) NIDILRR Seeks Comment on Draft Long-Range Plan
The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) is requesting comments on its draft long-range plan for the period 2018-2023.

This long-range plan provides an overview of the state of people with disabilities in the United States and NIDILRR’s current investments and potential future directions for research grants. NIDILRR is publishing the draft plan to obtain public comment on the proposed research and development activities to help the agency fulfill its mission.

Read the NIDILRR draft long-range plan. Comments will be accepted by email to by close of business on Monday, March 20.

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