Top Headlines:


UCP Releases “What Matters to You?” Video Focused on Health Outcomes of People with Disabilities


What You Need To Know About College And Disability


UCP Expresses Concern About American Health Care Act of 2017


CMS Gives States Until 2022 To Meet Medicaid Standards Of Care



May: Disability Awareness Month and Mental Heath Awareness Month


June 22: Affiliate Topical Call: Tips for Successful CARF Accreditation. 3:00 PM EST



“They Deserve More” Campaign

Thanks to UCP Seguin for sharing with UCP and the affiliate network this video that tells the story of UCP Seguin participant Matthew Hansen with us. The video features interviews with Matthew’s mother, Kathy Hansen and his dedicated direct support professional, LaTonya Roberson.

The “They Deserve More” Coalition is in the process of sharing the video with the Governor of Illinois, Bruce Rauner (R),  IL State Senators and Representatives, and, of course, constituents: staff members, foster parents, parents and family members, people with disabilities, board members, family, friends…everyone they can reach!

Please take a few minutes to view Matthew’s Story, and to share it with anyone you wish. The hope is to help move elected officials to do the right thing.

View the video on the “They Deserve More” website.

Share the video from the “They Deserve More” Facebook page with your family, friends, and networks.

Bellows Funds Update

The Board of Trustees approved a recommendation from the Bellows Committee that the Bellows allocations for affiliates be maintained at their current level and applied to the dues levels that become effective on October 1, 2017. The committee and Board of Trustees believe that it is important that individuals served by affiliates continue to enjoy the current support that has been available through the Elsie S. Bellows Bequest, and that the intent of the bequest is to provide assistive technology assistance to individuals. Affiliates must be in good standing and current on dues when an application for funds is submitted to the Bellows Committee.

Affiliate Topical Call Reminder: Tips for Successful CARF Accreditation

The Affiliate Topical Call will be held on June 27, 2017 at 3:00 EST. The presenters will be Monica Elsbrock, President and CEO, UCP of Nevada; Roberta Jaro, Chief Operating Officer, UCP of MetroBoston; and Brenda Yarnell, President and CEO of UCP of Land of Lincoln.  Discussion will include an overview of CARF for new organizations considering accreditations, changes in the standards for 2017, tips on the most troublesome standards, and best practices regarding the Leadership and Program Standards.

RAC Meetings

RAC Chairs are in the process of selecting dates and locations for the RAC meetings to be held in September or October. If you are willing to host a meeting, please let your RAC Chair know and please respond to their request for selection of dates and locations. We would like to get the dates on affiliate calendars so that participation will be maximized. Staying current on what is happening with UCP and sharing ideas with your peers continues to be one of the most valued aspects of affiliation with UCP.

Washington Update:

BudgetCongress passed an Omnibus spending bill last week that will keep the government funded until September. For a run-down on what that bill includes related to disability programs, our colleagues at AUCD put together this chart. Advocates continue to focus on FY 2018 appropriations. UCP joined over 750 nonprofit organizations to express support for 302b funding in the Labor-HHS package as well as a CCD group support letter to protect the Legal Services Corporation’s services for people with disabilities.

CaregivingUCP signed onto a support letter for the RAISE Family Caregiving Act, that was reintroduced in the Senate on May 5th. The Senate HELP Committee had a markup of the bill last Thursday and it passed out of Committee by UC (a good thing).CRTUCP sent a letter up to the Hill in support of the “Ensuring Access to Quality Complex Rehab Technology Act” to create a Separate Benefit Category for CRT within Medicare and make needed improvements in policies and safeguards for CRT items. There will be major cuts to Medicare coverage of CRT on July 1 if related legislation does not pass. UCP and our peers believes we need to create a separate benefit category all together for CRT to avoid the continual need to re-up short term exclusions.HealthANCOR is continuing to provide weekly briefings at 12:30 EST on Fridays about the latest movement on AHCA.OT While the OT Rule is still in suspense, the House recently passed a bill that addresses overtime pay called the Working Families Flexibility Act. ANCOR is monitoring this bill.Client-facing ResourcesDisability Integration Act:United Spinal is hosting a webinar “The Disability Integration Act & Why it Matters to You“ on May 23rd. This webinar will provide details about the Disability Integration Act, a bill that, if passed, would create an absolute right for all people with disabilities to live in the community instead of being forced into institutional settings, such as nursing homes. Learn more and register here.

Medicaid/AHCA Toolkit:The Autism Self-Advocacy Network (ASAN) recently released another plain language toolkit, this time focused on the ins and outs of Medicaid. Click here to learn more.

Organizational ResourcesHCBS News:On May 9th, CMS announced an extension for states to become compliant with HCBS rule. The new deadline is March 2022, which extends the due date three additional years.

REMINDER Respite Funding:ACL is opening up Lifespan Respite Funding for New States Only. Click here to see more about this opportunity. Interested state agencies must apply by June 14th.

Employment:1) The LEAD Center have a new brief on the ABLE Act and how ABLE accounts can be combined with other federal programs to further competitive integrated employment outcomes. Learn more here.

2) Senators Sanders (D-VT) and Murray (D-WA) have reintroduced a bill to raise the federal minimum wage to $15. Their bill also eliminates 14c waivers and youth sub-minimum wage laws.

Personal Care Services:The Government Accountability Office recently testified before the House Energy and Commerce Oversight Subcommittee on the need for more harmonized program requirements and better data for Medicaid’s patchwork of personal care services.

LTSS:If you missed ACL’s recent webinar with AARP on their scorecard for LTSS called “No Wrong Door” here are the slides.

Managed Care:At their recent meeting in Washington, MACPAC issued to two different publications of note: “Managed Long-Term Services and Supports: Network Adequacy for Home and Community-Based Services” and Program Integrity in Medicaid Managed Care

ADA Notification Bills:

If you want to learn more about the bills in Congress and various states that are seeking to amend the lawsuit process for ADA complaints, the Mid-Atlantic ADA Center recently hosted a webinar and here are the slides.


The Centers for Medicare & Medicaid Services’ (CMS) Medicaid Innovation Accelerator Program (IAP) is launching a new technical support opportunity for state Medicaid agencies to develop partnerships between state Medicaid agencies and their local housing systems to foster additional community living opportunities for Medicaid beneficiaries that require Long-Term Services and Support (LTSS). IAP will select up to eight states to participate in this 9-month opportunity. Click here to learn more.

Take Action


Time is running out to participate in the “The ABLE Act: A Tool for Financial Stability and Employment Outcomes Online Dialogue” hosted by the U.S. Department of Labor’s Office of Disability Employment Policy’s LEAD Center in support of efforts to collect innovative ideas on how ABLE accounts can be used to advance employment and financial self-sufficiency for youth and adults with disabilities. The ideas gathered during this online discussion will play an integral role in informing the LEAD Center’s work to increase understanding and provide guidance on how ABLE accounts can be used to assist youth and adults with disabilities in securing and maintaining competitive integrated employment. Participation is easy – simply register and post your ideas, comments and votes. To learn more about this dialogue, the ABLE Act and the LEAD Center, visit