Top Headlines:


UCP’s “Speak for Yourself” Project Holds First Twitter Chat on Self-Advocacy


Advocates Across the Country Come Together for ‘Disability Day of Mourning.’


What One Young Man Wishes People Would Ask About His Wheel Chair


Teen with Cerebral Palsy Realizes Her Country Singing Dreams




March: Developmental Disabilities and Cerebral Palsy Awareness Month


March 12-14:2017 UCP Annual Meeting of the Members of the Corporation at Embassy Suites Airport Hotel, Nashville, TN.


March 20-22: Disability Policy Seminar, The Renaissance Washington, DC Downtown Hotel. Register here.


March 23: Affiliate Topical Call. 3:00 PM EST. Topic: Google Adwords for Nonprofits. Hosted by the South RAC. Call in #: 1-888-402-6958.


March 24: CP Awareness Day Twitter Chat. Join and follow the conversation using #CPCan.


March 25: Cerebral Palsy Awareness Day


April 27: Volunteer Engagement Call 12:00 PM EST Topic: TBA



Updates Regarding UCP Hosted Affiliate Websites

UCP National is still performing maintenance on the website server. In some cases, affiliate websites have been impacted by these changes. If you discover anything unusual or otherwise not working on your website, please reach out to Ellie Collinson at or 202-973-7109. Thanks for your patience.

News from UCP of Washington, DC and Northern Virginia

Dawn Carter, Executive Director of UCP of Washington DC and Northern Virginia, has announced that she will leave the affiliate June 30, 2017. Dawn has been with the affiliate for nine and a half years, and we appreciate all that she has done to support individuals with disabilities in her community. Dawn will be working as a consultant to explore service delivery options in Northern Virginia, and has been teaching as an Adjunct Professor at a local Community College in the school of Psychology and Human Services. Under Dawn’s leadership, UCP of DC and Northern Virginia has improved the way adults with disabilities are served in the District of Columbia. We wish Dawn much success.
John Straus will be taking over the Executive Director position effective July 1, 2017 and is currently working part-time through the transition of leadership.

Update from UCP of Land of Lincoln
After 37 years of service, Brenda Yarnell, CEO of UCP of Land of Lincoln, announced her resignation on February 28, 2017. The search for a new CEO will begin immediately, and a transition is planned by July 1, 2017. Under Brenda’s innovative leadership, UCP of Land of Lincoln provides comprehensive services to over 600 children and adults with disabilities throughout Central Illinois. Services include: job training and placement, assistive technology, summer camps, residential support, day services, respite, case management, and advocacy. Brenda has shared her CARF expertise and social enterprise skills with affiliates, and has been a wonderful resource for the network. We wish Brenda continued success and many good wishes.

Annual Meeting March 12-14, 2017

We hope to see many of you in Nashville for this very important meeting of the affiliate members of UCP. You should have received all of the materials electronically that were prepared for the meeting. If you plan to attend, you are encouraged to bring a copy of the materials or have them available on a mobile device. We will not be providing books of the materials on site.

If you are not able to attend the meeting, once you have reviewed the materials you should give your proxy vote to someone who is attending and provide them any comments that you have about the materials.

The RAC meetings will begin on Sunday at 12 noon March 12, 2017. The West and South RACs will be meeting together, and the Northeast and Midwest RACs will be meeting together. The agendas are inclusive of many topics that will determine the direction of UCP. RAC Chairs should provide agendas, an overview document, a list of questions that will be addressed, and a report from the Marketing Sub Committee. If you have not received that information, you should contact your RAC Chair and bring copies with you to the meeting. We will not have copies on site.

There will be no refunds of registration fees.

Cerebral Palsy Awareness Day Twitter Chat on March 24
UCP National will hold a Twitter chat the day before Cerebral Palsy Awareness Day on March 24, 2017 at 2:00 pm. Follow along with the conversation by following the UCP national office on Twitter @UCPNational and by using #CPCan.

“Changing Spaces” Seeks to Bring Access and Dignity to a Universal Experience

“Changing Spaces” is a national campaign aimed at advocating for universal changing spaces in public restroom across the United States. The “Changing Spaces” campaign has already seen success in the United Kingdom. Universal changing spaces are spaces that make the restroom experience accessible and dignified for individuals with disabilities and their caregivers. On the Voices of UCP blog, we explore the work being done on the state-level in Georgia to create awareness for the need for universal changing spaces. Read More

Washington Update:

As a corporate member of ANCOR, UCP executives should be receiving weekly Washington Insiders Club e-newsletters as well as opportunities to take action on specific policy campaigns. ANCOR is also hosting weekly briefings on Medicaid Reform. If you are not receiving these updates, please write to Ellie Collinson, UCP’s Chief Program Officer, at If you missed ANCOR’s new member orientation, the slides are available here. Also, this past week ANCOR’s Director of Public Policy Katherine Berland provided an overview of the ACA Repeal and Replace landscape; the webinar archive is here.

In the big picture, we signed onto a letter put out by the nondefense discretionary coalition NDD United opposing cuts to nondefense discretionary federal funding. We also signed a group letter of organizations concerned with the lack of transparency in the process to move a budget resolution forward.
More specific to UCP’s mission, we joined a group letter about the essential health benefit of habilitation services and supports. And also a letter to support the Medicare Access to Rehabilitation Services Act of 2017, the outpatient therapy services cap repeal legislation introduced in both the House (H.R. 807) and Senate (S. 253).

ICYMI, Brian Neele has been tapped to lead the Medicaid and CHIP division of CMS. And, our latest favorite ACA resource is Kaiser’s new video explaining block grants and per capita caps.

Client-Facing Issues

The Arc, in collaboration with the Research and Training Center on Community Living at the University of Minnesota, has launched the 2017 Family and Individual Needs for Disability Supports Survey which seeks to capture perceptions of family caregivers of individuals with intellectual and developmental disabilities (I/DD) on a range of life-span issues. The survey closes March 30th and can be found here.


The Institute on Employment and Disability at Cornell University is hosting a webinar on March 16th entitled “Managing Work, Life, and Disability: Considerations for Individuals and Employers.”


The Center on Disability and Technology has produced a helpful guide for parents and teens about AT.

Organizational Issues


1) Resources for Integrated Care is hosting a webinar series on disability competent care. The session focused on LTSS is on March 22nd. Learn more here.

2) The HCBS Clearinghouse has put together a suite of maps about adult day service providers, if you’re looking for benchmarks.  Employment:

ACCESS, along with the New York State Rehabilitation Association, are hosting a webinar on March 22nd about the transformation plan in NY State.


The Commonwealth Fund is hosting experts from the Institute for Healthcare Improvement, accountable care organizations, and Medicare Advantage plans on Wednesday, March 15, 2017, from 12:15 p.m. to 1:00 p.m., EST, for an interactive webinar discussing promising ideas for better care for patients with complex needs. They also have a website of resources.


The Center for Health Care Strategies released a new issue brief which outlines the current state of Medicaid non-emergency medical transportation (NEMT) services.


Affiliates working with their State Education Agency(ies) to develop ESSA plans might find this tool from the National Center for Systemic Improvement useful.

Take Action

1) NIDILRR Seeks Comment on Draft Long-Range Plan
The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) is requesting comments on its draft long-range plan for the period 2018-2023.

This long-range plan provides an overview of the state of people with disabilities in the United States and NIDILRR’s current investments and potential future directions for research grants. NIDILRR is publishing the draft plan to obtain public comment on the proposed research and development activities to help the agency fulfill its mission.

Read the NIDILRR draft long-range plan.

Comments will be accepted by email to by close of business on Monday, March 20.


Join The Conversation
Find @UCPNational on Facebook and Twitter        
and follow the Voices of UCP blog for up-to-the-minutenews and information.Subscribe   Unsubscribe


UCP’s Network News | | United Cerebral Palsy | 1825 K St NW, Suite 600 | Washington, DC 20006 Email Marketing by iContact - Try It Free!

Jump to Toolbar