Top Headlines:


UCP National to Hold CP Awareness Twitter Chat March 24 at 2:00 PM EST


Collaborative Organizations Release 2017 Developmental Disabilities Resource Guide


15 Things I Want Everyone to Know About Cerebral Palsy


Photographer Creates Powerful Photo Series to Re-Think Perceptions on Disability


“Hugs + Mugs” is the First Cafe Run By Employees with Down Syndrome




March: Developmental Disabilities Awareness Month

Cerebral Palsy Awareness Month


March 20-22: Disability Policy Seminar, The Renaissance Washington, DC Downtown Hotel.


March 23: Affiliate Topical Call. 3:00 PM EST. Topic: Google Adwords for Nonprofits. Hosted by the South RAC. Call in #: 1-888-402-6958.


March 24: CP Awareness Day Twitter Chat. Join and follow the conversation using #CerebralPalsyCan.


March 25: Cerebral Palsy Awareness Day
April 27: Volunteer Engagement Call 12:00 PM EST Topic: UCP Trademark/Brand Protection



Annual Meeting in Nashville March 12-14, 2017

Thanks to all of you who were able to attend the recent annual meeting and for your participation in the discussions that were critical to UCP. There were multiple opportunities for attendees to provide input throughout 2 days of meetings, discussions and presentations. At the Annual Meeting of the Members, UCP affiliates came together and voted on motions that will set the course for UCP in the near future.

Committee reports that were presented were all sent to each affiliate in the materials labeled 2017 Annual Meeting prior to the meeting. The PowerPoint from Therap and the one used for the Public Policy report given by Jeanne DeSa on March 13, 2017 were not in your materials and are now available on the Affiliate Portal 2017 Annual Meeting Materials.

The snowstorm that hit the Northeast made for difficult travel for many attendees and several were unable to leave Nashville until Wednesday or Thursday. We appreciate the effort that everyone made to attend, and hope everyone returned home safely! Special thanks to our exclusive sponsors Therap and 501(c) Agencies Trust and to Pharmacy Alternatives for financial support and the lanyards.

For those who were not able to attend the annual meeting this is the link to the YouTube video for the use of UCP affiliates only

The YouTube video will be available to be used as is and we are considering  another version that may be shorter, include images from affiliates and be in HD. Affiliates will also have an opportunity to have it personalized for a reasonable fee. Credits for the video are:

Lyrics by Annivar Salgado, Executive Producer, IMPS
Music by Janet Alikpala
Performed by Eric Brandt
Video produced by Infinitec Media, a division of UCP Seguin of Greater Chicago
© 2017 Pina Colado Music
Feedback on the YouTube Video that was presented and the approved Purpose and Message Statements (the report from the Marketing Sub Committee was included with materials for the meeting of the membership) should be directed to Anita Porco, VP of Affiliate Network at

Jeff Cooper Receives Kathy O. Maul Leadership Award
Our congratulations to Jeffrey Cooper who received the Kathy O. Maul Leadership Award on Monday March 12, 2017 at the Annual Meeting. This award is the highest honor presented to affiliate leadership. Rick Forkosh, Interim CEO, presented the award at the opening session. You can read more here.

UCP of NYC is Now Known as ADAPT Community Network
On March 8, 2017, the Board of Directors of United Cerebral Palsy of New York City announced the official name change of UCP of NYC to ADAPT Community Network, and relaunched their brand. The name change and brand launch was celebrated at the affiliate’s 70th Anniversary Gala at the New York Hilton on Thursday March 9, 2017 to honor the milestone. The new website is and ADAPT’s new tagline is:  [We Change]. “Whether it is lives, environments, social attitudes or our own services, it’s the most important thing we’ve learned in 70 years.” UCP of NYC has over 100 comprehensive programs that include education, health, technology, residential, and recreational services for thousands of individuals and families annually.

UCP of Baton Rouge Announces New Executive Director

Doug Leyda, Interim Executive Director announced that Anne Hindrichs has been brought on as the new Executive Director for UCP of Baton Rouge effective March 13, 2017. Anne served for more than 28 years as a social worker, and ultimately as Director of Programs and Services, before leaving the affiliate on May 24, 2016. Anne has stated, “With our Board of Directors, dedicated staff, the amazing families that we serve, and community support behind us, we will work together to be better than we have ever been. I can’t wait to be a part of my UCP of Baton Rouge McMains family again.” Please join us in welcoming Anne!

UCP of Huntsville and Tennessee Valley Hosting National Lifespan Respite Conference

From October 11-13, 2017 UCP of Huntsville and Tennessee Valley will be hosting the National Lifespan Respite Conference in collaboration with ARCH. There is also a call for presentations to be submitted before March 24, 2017. The conference link can be foundhere.

Affiliate Topical Call March 23, 2017 at 3:00 PM EST: Google Adwords for Nonprofits

In 2011, Google launched its Ad Grants program, providing eligible nonprofits with $10,000 per month in free online advertising.

What is Google Adwords? Every time you search for something on Google, you’ll notice that Google will show paid advertising, typically at the top, bottom or side of the page, along with the other search results.

This is Google’s paid advertising, also known as Google Adwords.This has also enabled Google to annually donate $100 million, 200,000 hours and $1 billion in products to health, education and community causes.

Google Adwords Grants is a program that offers in kind support ($10,000 per month) to qualifying 501(c) 3 organizations that can be used to increase awareness, recruit volunteers, promote events, and grow donations.  With a little time and ingenuity, Adwords has been shown to lead up to 40,000 new visitors each month to your website!

Mike Salmen and Dennis Csillag will be providing an introduction to Google Adwords Grants for Nonprofits. What it is, how to apply, additional resources, and next-steps to build and maintain a successful online advertising presence.
Call in information is provided in the calendar of events. For questions, contact Anita Porco at

Washington Update:

Last week Congress passed H.J. Res. 57 which rescinds the accountability regulations of the Every Child Succeeds Act. Here is CCD’s opposition letter describing the impact to students with disabilities.

As of our press time, Republican leaders in the House have indicated they will vote on the AHCA bill (likely with some amendments from the Rules Committee, and/or on the floor) this Thursday. Some helpful resources related to the CBO score and specific impacts for people with disabilities includes this blog post, this Kaiser issue brief, this list from NHeLP, this statement from the National Disability Navigator Resource Collaborative, and this resource page at the Center for American Progress (includes video co-produced with The Arc). ACCESS also shared a series of helpful slides comparing the House and Senate versions of the bill as introduced.

We are also monitoring the President’s budget proposal to Congress. CCD issued a statement, and other statements of note include n4a and National Center for Learning Disabilities.

UCP continues to sign on to group letters produced by our allies on a range of topics. CCD has issued an important letter on AHCA with over 100 signing organizations. We are also supporting the testimony of The Arc at an upcoming hearing tomorrow with the House Ways and Means Committee, who are reexamining the SSA Representative Payee program.

Lastly, UCP is a part of the ITEM coalition which is focused on improving the coverage and relate reimbursement costs for durable medical accessories. Peter Thomas placed an Op-Ed in the Hill this past week on the importance of this issue. UCP has signed onto group letters on two related bills circulating in Congress regarding this complex rehabilitation technology. You can learn more about this issue on our website or in this related summary from CMS.

For the latest insights, please be sure you’ve signed up for ANCOR’s Washington Updates or join their weekly Friday calls. If you need assistance with accessing ANCOR’s resources, please write to Ellie Collinson at

Client-facing Resources


1) The Great Lakes ADA Center is hosting a webinar tomorrow on Access to Healthcare: The ADA and the ACA. Learn more and register here.

2) On March 15, 2017, the CMS Office of Minority Health (CMS OMH) and the Federal Office of Rural Health Policy at the Health Resources and Service Administration (HRSA) announced a new educational initiative call Connected Care, which aims to raise awareness of the benefits of chronic care management (CCM) services for Medicare beneficiaries with multiple chronic conditions. Connected Care is a part of a nationwide effort to better serve Medicare beneficiaries under fee-for-service with a particular focus on racial and ethnic minorities and rural populations. Click here for more information on Connected Care.


1)ThinkWork is recruiting parents of young people with intellectual and/or developmental disabilities (I/DD) for a study to test the impact of an individualized motivational communication strategy on planning for employment in the community. The study also explores how individuals with I/DD and family members use information and supports to develop an employment vision, and move from that vision to an employment outcome. Participants must be parents of a student with I/DD between the ages of 14 and 24. All participants will be entered to win a $100 gift card. To register or for more information, contact John Shepard at 617/287-4345 or

2) The Federal Office of Personnel Management is hosting two upcoming webinars for students and recent graduates about entering the federal workforce. Click here to learn more.

Organizational Resources

Funding Opportunity:

1) NIDILRR has opened up another grant opportunity for TBI research and evidence-based rehabilitation practices. Learn more here. There is a similar opportunity for spinal cord injury as well.

2) The AARP Foundation has launched a new grant opportunity for programs that ensure that low-income and vulnerable older adults have nutritious food, affordable, livable and healthy housing, a steady income and sustaining social bonds. All applications must be completed online. 


ICYMI, The Government Accountability Office (GAO) has released a report calling for improved oversight in reimbursement rates for LTSS for states using Medicare Managed Care programs.


1) The LEAD Center is hosting a webinar tomorrow about the UT competitive integrated employment cooperative agreement amongst agencies in the state. Click here to learn more, and register/access the archive.

2) The LEAD Center is also hosting a webinar on provider transformation, which pertains to the process of changing over a disability service provider from a sheltered workshop-style setting to one that provides competitive and integrated employment. Click here to learn more, and register/access the archive.


ICYMI, ARCH recently hosted a webinar on sustainability issues in respite care. Click here to find the online resources and archived webinar.

Take Action

Centers for Independent Living Annual Program Performance Report

Open for Public Comment

On March 10, 2017, ACL released for public comment proposed revisions for the Centers for Independent Living Annual Program Performance Report (CILPPR). The notice for the Proposed Revisions is now on display in the Federal Register. ACL notes that the final CILPPR will not take effect until all comments have been reviewed and a final information intake tool is released. Comments are due by May 5, 2017.

Click here  for more information on how to submit comments, and here for the notice.


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