Top Headlines:

 

Proposed Budget Cuts Concern Disability Advocates

 

A Man In A Wheelchair Denied Access to Oklahoma Capitol

 

KY Attorney General to Seek Broader Authority to Investigate and Prosecute Abuse of Medicaid Recipients

 

Twelve Year-Old Creates App to Help People with Disabilities Navigate Accessible Spaces

 

Five Things a Sibling of an Individual with a Disability Would Know

 

ADA Education and Reform Act of 2017 Concerns Advocates

 

UPCOMING EVENTS:

 

June 1-7: CPR Awareness Week

 

June 27: Affiliate Topical Call: Tips for Successful CARF Accreditation. 3:00 PM EST. Call-in #: 1-888-402-6958.

 

October 11-13: 2017 National Lifespan Respite Conference, Huntsville, Alabama Register here.

 

 

A Special Thanks to Rick Forkosh, UCP National’s Interim CEO

 

All of us are grateful to Rick Forkosh, who has served as the Interim CEO at UCP National for the past year, and acknowledge all of his efforts! The organization is in a much more stable place financially and his leadership has been critical to affording UCP the opportunity to move forward successfully. Rick has been looking forward to retirement, and we wish him rest, relaxation, and travel in his future! His willingness and ability to guide us through the past year is very much appreciated. Rick will continue to provide assistance during the transition of leadership.

 

Armando Contreras Named CEO of UCP National

 

Effective June 5, 2017, UCP is pleased to welcome Armando Contreras as the President & CEO of UCP. Having a CEO that comes from a successful affiliate has been widely lauded by the affiliate network and we look forward to Armando’s leadership. Armando has excellent credentials and you can read more about Armando’s selection by the UCP Board of Trustees here.

UCP is Deeply Saddened by the Passing of Gary Davis

 

It is with great sadness that we inform the affiliate network of the passing of Gary Davis on Saturday May 20, 2017. Many of you knew Gary when he served as the Director of Affiliate Services for many years until he left UCP in January of 2005. Gary and his partner of 35 years, Rick Fleetwood (serves on the UCP Bellows Committee) hosted many events for UCP of Arkansas and UCP in their lovely home in Little Rock. Always the professional and always the fashion statement, Gary loved working with affiliates. His presence lit up a room and his contributions to UCP are unforgettable. Our condolences to Rick and sympathy to Gary’s family as we remember Gary fondly, and recognize his work on behalf of people with disabilities. You may view the memorial page and the guestbook by clicking here or by clicking View Obituary below the photo to the right.

 

UCP of Sacramento and Northern California Humanitarian of the Year

 

Congratulations to UCP of Sacramento and Northern California on the success of their most recent Humanitarian of the Year event. This year the event, in its twenty-fourth year, raised $323,000 and had attendance of 680 people! To read more about the event, click here.

 

If you have an event that you would like to showcase with the network, send an email to aporco@ucp.org.

Affiliate Topical Call: Tips for Successful CARF Accreditation on June 27th

 

The topic of Tips for Successful CARF Accreditation will be presented on June 27, 2017 at 3:00 PM EST. The call in number for the Affiliate Topical Call is 1-888-402-6958. Please RSVP to the calendar invitation that was sent to affiliates. If you did not receive the invitation and wish to participate, please email aporco@ucp.org.

 

Steptember Event with CPARF

 

The parameters of the opportunity for affiliates to participate with Cerebral Palsy Alliance Research Foundation (CPARF) in the Steptember event was discussed extensively at the UCP annual meeting in March. Twelve UCP affiliates have chosen to participate in the event working directly with CPARF. Jason Portugal, Technology Coordinator at UCP of San Luis Obispo, has offered to work with CPARF on the UCP landing page of the website. You may see ads on TV or hear them on the radio as CPARF, working with their corporate networks, is planning a targeted national TV and radio campaign across the U.S. between June and August. They will also have an aggressive social media campaign on several platforms. UCP National is not involved with, nor participating in, the Steptember event. UCP National will have no control over, nor input, into the media events or language used since CPARF is not an affiliate of UCP, Inc.

 

Washington Update:

ADA:10 California UCP affiliates joined a statewide letter calling on Members of Congress from the California Delegation to oppose the ADA notification bills in the House and Senate. UCP National is also working on a Congressional Staff Briefing with members of the CCD Rights Task Force and Congressmen Langevin and Harper’s staff about the ADA and employment in July.

 

AHCA: As the Senate continues to deliberate on the House bill and possible revisions, UCP joined a group letter expressing concerns about the House version’s revisions to Medicaid as well as essential health benefits (EHBs). The Center for Public Representation also has great web resources for anyone making calls. UCP National has joined forces with ANCOR and several other groups staging a Lobby Day and Rally on June 6th. UCP also continues to be a partner in the Modern Medicaid Alliance. Yesterday, MMA rolled out their series “Medicaid Solutions.”

 

Budget:UCP joined other members of the Employment Task Force in calling on Congressional Appropriators to protect the Office of Disability Employment Policy. ANCOR and CCD both issued statements about the impact of the President’s recently released budget on the lives of people with disabilities and their families. The National Respite Coalition’s summary is helpful as well. Lastly, a helpful story about the impact of the POTUS budget on ongoing AHCA negotiations in the Senate is here.

 

Caregiving:UCP joined AARP and about 15 other organizations in expressing support for the Credit for Caregiving Act which would create a family caregiver tax credit. Learn more about the bill here.

 

CRT: UCP joined an ITEM coalition letter to Congress and Secretary Price bringing attention to the Durable Medical Equipment DME program and the need for complex rehab technology. UCP is also joining United Spinal’s Lobby Day on June 13th as well as the HAB/CPR/ITEM joint Lobby Day (and Briefing) on June 27th.

 

Respite:UCP joined several other groups groups in sending a letter of support up to the Hill for the reintroduction of the Lifespan Respite Reauthorization Act introduced by Congressmen Langevin and Harper (and a companion version in the Senate was also jointly introduced by Senators Collin and Baldwin). UCP has also joined the National Respite Coalition’s letter for FY 2018 funding for the Lifespan Respite and the National Family Caregiver Support Programs.

 

Transportation:UCP joined a group letter to the House Energy and Commerce committee opposing a bill that would rollback coverage under Medicaid for non-emergency medical transportation (NEMT).

 

Client-facing Resources

 

Employment:

The Association of Programs for Rural Independent Living (APRIL) is hosting a webinar in their Youth Peer Mentoring Program regarding Fee for Service and Youth Programs. The presentation will discuss the new Pre-ETS (Pre Employment Transition Services) and how it is working currently in some areas. Learn more and register here.

 

Organizational Resources

 

SSI and SSDI:

The Social Security Task Force of CCD has put together a FAQ sheet about the President’s budget with respect to SSI and SSDI as well as information about a “Sliding Scale” proposal being circulated for SSI reform. Click here and here for more information.

 

WIOA:

The Independent Living Administration at ACL has issued a New FAQ on Independent Living Services for Children and Youth with Disabilities with respect to WIOA core services. Find it here.

 

Transitional Employment:

The Association of University Centers on Disability (AUCD) recently produced a webinar on Pathways to Employment for Transition Aged Youth and Young Adults with ASD. Check out the archive here.

 

HCBS:

Earlier this month, ACL launched a webinar series reflecting the agency’s commitment to and development of measures for home and community-based services (HCBS) quality. The series provides a platform for internal and external stakeholders to share developments and collaborate on HCBS quality efforts. Here are a transcript (PDF), recording, and slides (PDF) from the first webinar in this series.

 

Managed LTSS:

1) National Association of States United for Aging and Disabilities (NASUAD) is pleased to announce the release of a new report, Demonstrating the Value of Medicaid MLTSS Programs, developed in partnership with the Center for Health Care Strategies (CHCS). The report also marks the first in a series of publications from the MLTSS Institute, which was established in 2016 to drive improvements in key MLTSS policy areas, facilitate sharing and learning among states, and provide direct and intensive technical assistance to states and health plans.  Learn more here.

 

2) Also, if you missed the recent webinar for CBOs on Managed LTSS, click here.

 

Vocational Rehab:

The NIDILRR-funded Rehabilitation Research and Training Center on Employment of People with Physical Disabilities will host a webcast, Vocational Rehabilitation Services for Individuals with Physical Disabilities, June 8th, 2-2:45pm ET. This webcast will cover what vocational rehabilitation can offer individuals with physical disabilities and how best to obtain positive results. Click here to learn more.

 

FLSA Home Care Rule:

Applied Self Direction is hosting a webinar on the FLSA Home Care Rule Updates today (June 1). This webinar will provide an overview of recent federal and state labor law updates related to home care, as well as an analysis of the potential impact of these developments on self direction programs. For more information, click here.

 

Housing:

The Mid-Atlantic ADA Center recently hosted a webinar with United Spinal on Housing and the ADA. Clickhere for slides.

 

Take Action

1) UCP is a member of the Modern Medicaid Alliance and yesterday MMA launched their Medicaid Solutions series to call attention to the health innovations developed in Medicaid. Interested states and organizations are invited to share their stories for inclusion in the series via the MMA website.
2) The Healthy People 2020 Law and Health Policy Project is seeking to explicitly link a legal or regulatory requirement to specific actions that addresses improving services, accessibility and lives for persons with a disability. We are currently looking for specific activities around the country as “bright spots” for the report.  If you are aware of any activities in your state or community that address any of the bullet points below, please send them to Lisa Iezzoni, MD, MSc at liezzoni@mgh.harvard.edu.

*State or local efforts to leverage the new U.S. Access Board regulations about medical diagnostic equipment accessibility standards to increase accessibility in local health care facilities or practices.  For example, in Massachusetts these standards are helpful in negotiations with the Medicaid program about requirements for contracted providers.

*State responses to the Olmstead decision that have systematically assisted persons with disabilities to leave institutions and become able to participate in community and social activities.

*State or local responses to disability access regulations that have driven improvements in access to health and wellness programs in the community.