Important Affiliate Website Update

We have moved affiliate-hosted websites to a new server provider called Liquid Web. Liquid Web has extensive experience supporting WordPress sites and we believe this change will vastly improve the security– and also the speed– of all the supported websites in the network.

Thank you for directing your staff to work with Ellie Collinson, Chief Program Officer (ecollinson@ucp.org, 202-973-7109), to make the necessary updates to your domain records. If you have not yet completed this process, please note that the old server will be retired on April 25th.

Volunteer Engagement Call April 27, 2017
Our presenters for the Volunteer Engagement Call on April 27, 2017 have had an unexpected issue arise and will be unable to present on April 27. We will attempt to reschedule this topic for the call on July 27, 2017, and will keep you updated with any further information. We apologize for the late cancellation of the call, and will look into finding another topic for presentation around mid-May.

September Event

If your affiliate plans to participate with Cerebral Palsy Alliance in Steptember 2017, please submit the following information to Anita Porco aporco@ucp.org by April 21st 5:00PM EST:

  • Name of the Affiliate
  • Main Contact Name
  • Email Address
  • The number of teams that you plan to promote in your affiliate

The event launches on September 4, 2017. Team payment codes and the URL for participants will be sent to participating affiliates by May 15, 2017.

Welcome Judith McCowan, CEO of UCP of Central PA.

The Board of Directors of UCP Central PA has named Judith McCowan as President and CEO, effective May 1, 2017. She also assumes the position of Executive Director of the UCP Foundation of Central PA.

A native of Maryland, Judith comes to UCP with 30+ years of nonprofit leadership experience and proven expertise in the fields of early childhood, education, and disability services. In addition to her effective leadership skills, she has a track record of improving performance and profitability across public, private, and nonprofit sectors alike. She has demonstrated strength in several key skill sets, including: fiscal leadership, strategic business development, contract and grant administration, and project management.

Judith was most recently Chief Executive Officer of Core Business Consultants, a privately-owned firm specializing in consulting with struggling human services programs in their quest to achieve transformational change. Prior to that she was Chief Contracts and Program Officer at Melwood, a leading DC-based nonprofit provider of employment and supportive services for people with differing abilities. She also previously served as Regional Director of Operations and Federal Contracts Administrator at Bright Horizons Family Solutions, the largest provider of employer-sponsored childcare in the United States. Judith has extensive experience in childhood and educational program operations, and as a K-12 private school principal as well. She has received numerous personal and professional awards for her transformational leadership, performance, and achievements on project work at the highest levels of government and on both the national and global stage. Welcome, Judith, to UCP!

EasterSeals UCP of North Carolina Achieves Highest Level of Accreditation from CQL

Easterseals UCP of North Carolina has been awarded the highest level of 4-year accreditation awarded by Council on Quality Leadership(CQL)  – Person Centered Excellence with Distinction!  The reviewers told the affiliate that only a handful of organizations internationally have achieved this level.

The ‘with distinction’ award reflects the staff’s authentic dedication and commitment (direct service, supervisory, and administrative support) to the quality of the array of person-centered services they provide, the people they support, their families, and their community stakeholders.

President and CEO Luanne Welch stated “this type of accreditation cannot be orchestrated. Policies, procedures, and data are simply not enough. We cannot just say the right things; we must try every single day to do the right things. The ‘magic’ must happen in our communities – and it did. The CQL reviewers witnessed it first-hand all last week.”

Congratulations to all of the staff at ESUCP of NC for this achievement!

Bellows Funds:

A reminder to affiliates to review the Bellows Funds Guidelines and utilize your allocations to the fullest for individuals that you serve. The Bellows Committee is anxious to distribute available funds to every affiliate!

Washington Update:

ABLE Several Members of Congress recently reintroduced a package of bills aimed at expanding the eligibility and utility of ABLE accounts. UCP is a supporting organization of the ABLE National Resource Center. Here is their summary of what these bills would do.

Civil Rights UCP has long been concerned with efforts on the Hill to reform the ADA with what are called “notification” bills. We have joined a group letter to the Hill and will continue to monitor this issue.

Complex Rehab Technology (CRT) UCP, with the ITEM Coalition, sent a letter to Health and Human Services Secretary Price and a letter to Congress expressing our support of H.R. 1361/S. 486, which would permanently exempt Complex Rehab Technology (CRT) wheelchairs and components for people with disabilities and chronic conditions from Medicare’s Competitive Bidding program.  This important legislation will protect Medicare beneficiary access to both power and manual complex rehab technology, as well as essential components known as wheelchair “accessories.”

Health Ding Dong, AHCA is dead! But legislative maneuvers like this amendment keep some of the chips on the table. We have more state-level stats on what AHCA would have done if it had passed and also information about state-level options moving forward in the absence of AHCA. UCP joined members of the HAB coalition in sending a group letter to the Hill advocating for the continued inclusion of habilitation services as an essential health benefit in any forthcoming health care proposals. UCP also joined with PIPC partners to petition ICER on value frameworks.

For the latest insights, please be sure you’ve signed up for ANCOR’s Washington Updates. If you need assistance with accessing ANCOR’s resources, please write to Ellie Collinson at ecollinson@ucp.org.

Client-facing Resources

Self-Advocacy:

AAPD is proud to offer eight NBCUniversal Tony Coelho Media Scholarships for students with disabilities in 2017. Eligible applicants include undergraduate and graduate students with disabilities who are interested in pursuing a career in the communications, media, or entertainment industry. Each recipient will receive $5,625 to help cover the cost of education at their current college or university. Apply here.

ABLE:

The LEAD Center, in collaboration with the ABLE National Resource Center, will be holding a webinar focused on how individuals with disabilities, and their families, can use ABLE accounts to increase their financial stability and produce more positive employment outcomes. Register here.

Organizational Resources

Funding Opportunity:

1) Program Supports Alternative Education for Youth – Department of Labor
The YouthBuild program is a community-based alternative education program for youth between the ages of 16 and 24 who are high school dropouts, aging out of foster care, or are disabled or homeless. The application deadline is May 9, 2017.

2) Apply for a 2018 MEAF National Grant

Did you know? MEAF is looking for innovative projects that help youth with disabilities develop the leadership and employment skills they need to succeed, particularly for careers in science, technology, engineering, arts & design, and mathematics (STEAM). MEAF will also consider projects to create tools that help break down barriers to employment and increase job opportunities for young people with disabilities entering the workforce, including returning veterans with disabilities. Applications are accepted April 1st through June 15th through the MEAF website. Learn about their priorities and guidelines.

Managed Care:

The Aging and Disability Business Institute is having a webinar tomorrow on market analysis and strategic integrated care decision-making. During this webinar, speakers will cover how to identify your organization’s “products”, analyze the market for them, develop market strategies and more. Register here.

Respite:

1) Lifespan Respite Grantee and Partner Teleconference Call Recording Now Available “A Conversation with Experts on Cultural Diversity: Applications for Respite Services, March 29, 2017.” This call introduced lifespan respite grantees and partners to resources on cultural diversity. To access a recording of the call and a fact sheet from the National Consortium, click here.

2) “Developing Culturally Responsive Approaches to Serving Diverse Populations: A Resource Guide for Community-Based Organizations.” Community-based service organizations are reducing disparities in access and use of important social services by increasingly diverse communities. In this report, learn about the many resources available to improve services to targeted populations, and to obtain supporting funds.

Take Action

Integrated Care Environmental Scan

A cooperative agreement of organizations (including ANCOR) is aimed at building the capacity of community-based disability organizations to contract with integrated care and other health sector entities. The group is conducting an Environmental Scan that will help guide this effort.

The growing trend nationwide to integrate healthcare and long term services and supports are creating exciting opportunities for CBOs open to operating in new ways. This comprehensive environmental scan survey will serve as the foundation for the development of tools and resources to help organizations improve their ability to work with managed care organizations, accountable care organizations, and other health systems. Click here to learn more and take the survey.

Quality Measure Development and Maintenance for CMS Programs Serving Medicare-Medicaid Enrollees and Medicaid-Only Enrollees: Healthy Days in the Community (Duals-2)

The public comment period for the Healthy Days in the Community (Duals-2) measure has been extended through April 21, 2017.  A memo listing questions on which we request public comment, as well as the measure information form (MIF) and measure justification forms (MJF), are available in a zip file in the Download section on this web page.
If you wish to comment on these measures, please submit your comments by close of business April 21, 2017 to MedicaidQualMeasures@mathematica-mpr.com.

Centers for Independent Living Annual Program Performance Report Open for Public Comment:

On March 10, 2017, ACL released for public comment proposed revisions for the Centers for Independent Living Annual Program Performance Report (CILPPR). The notice for the Proposed Revisions is now on display in the Federal Register. Comments are due by May 5, 2017.

Click here for more information on how to submit comments, and here for the notice.

ACL Seeking Comments on Principles of Person-Centered Serious or Advanced Illness Care

ACL believes that every person should be able to make choices and to control their own decisions, regardless of their age, disability, or illness.

ACL, in consultation with stakeholders from the aging and disability communities, has drafted a set of principles to guide their work in this area, and to enhance existing programs and services related to serious or advanced illness for older adults and people with disabilities.

ACL is seeking input from the people we serve—older adults, people with dementia, people with all types of disabilities, and the families and caregivers who often support them.  They hope to hear from  partners in the aging and disability networks.  Please send your comments, by May 12, 2017, to AdvancedIllness@acl.hhs.gov.